ABOUT
This is the facebook website consisting of many important files and research.
The site has resumed. There are over 32k members from all over the world. https://www.facebook.com/groups/1489732487968980 MAST CELL ACTIVATION DISORDERS FORUM is primarily a patient support and research group. The main thrust of the group is to advocate for each other, as we are all patients and/or caregivers. We are here to support each other first and foremost, and we do not support any either group division or any form of prejudice against others. We are a voice to patients, survivors, caregivers, and to one another.
Recent findings suggest Mast Cell Activation Disorders remain under-diagnosed. We embrace all forms of systemic mast cell diseases and welcome any questions, sharing of valid research, and group discussions within the Mast Cell Forum.
Topics here include Mastocytosis, Mast Cell Activation Syndrome, Eosinophilic, and other excessive "mediator" afflictions; e.g., POTS, EDS, "Multiple Drug Hypersensitivity Syndrome,” Food Intolerance , IA and other recurrent Anaphylaxis/Anaphylactoid reactions, Urticarias, Angioedema, Asthma, Fibromyalgia, IC, IBS, Mitochondrial Dysfunction, GI disorders, TMJ, Migraines, MS, CIPD, CFS, Sleep disorders, Chemical sensitivities, Dysautonomia, Dercum's disease, and Gulf War Syndrome, Lyme, Chronic Inflammatory Response Syndrome. This list is not all conclusive !
If you’re looking for lively discussion on various mast cell activation topics, you have found your home forum! We have fair posting guidelines, and try to find answers through cutting-edge, proven research.
Fragrance and chemical sensitivity among the medically vulnerable Many medical vulnerable patients can be made seriously ill from exposure to low levels of fragranced products. Some can even face life threatening emergencies. Some of these patients are forced to forego even the most basic medical care due the vast quantities of fragrances and other chemicals in the medical environment
Non-allergic rhinitis - Mayo Clinic says that among the triggers of this condition are “Environmental or occupational irritants. Secondhand smoke or strong odors, such as perfumes, can trigger nonallergic rhinitis. Chemical fumes, such as those you might be exposed to in certain occupations, also may be to blame. Other conditions in which fragrance can exacerbate or cause medical symptoms include: Neuroendocrine Cancer * Cancer patients undergoing treatment *Gulf War Syndrome *Fibromyalgia * Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) Multiple Chemical Sensitivity/Environmental Illness *Toxic Encephalopathy *Autism *Migraines * Parkinsons Disease * autoimmune diseases * COPD * Connective tissue disorders such as Ehlers-Danlos Syndrome * Hereditary Alpha Trypesemia Syndrome * and more
Vocal Cord Dysfunction - National Jewish Health says, “Possible triggers of vocal cord dysfunction (VCD) and are often similar to asthma triggers.” They note “Strong odors or fragrance” as triggering VCD. VCD can be a life threatening emergency when vocal chord spasms cut off the airway. Mast cell disorders - including Mastocytosis and mast cell activation syndrome. The Mastocytosis Society lists, among triggers, “Natural odors, chemical odors, perfumes and scents." A myriad of symptoms can occur in multiple body systems, and can include anaphylaxis - a life threatening emergency.
Asthma - The American Lung Association notes: “Scents from perfumes, deodorants and cleaning supplies can affect a person with asthma.” The Canadian Medical Association Journal notes “... a range of stimuli that do not fall into the category of allergens” provoking asthma, which can include “second-hand cigarette smoke, cleaning fluids such as bleach, perfume and other strong odors.” (CMAJ, October 2015) Asthma attacks can be fatal.